Most people who know me, know that I am a numbers person, and it's really hard to believe that 240 days have passed since Braeden's diagnosis of this pain in the butt (actually, that should really be his neck and hand not butt) spinal cord tumor.
I was curious and looked to see how long it had been since his brain tumor diagnosis. The answer is 5,049 days. The kid has only been here on this earth for 5,680 days. (He will tell you in a quick second, that he is 2 very important minutes older than Braxton:)
During those 5,049 days of his life he has taught me in so many ways what it means to be a hero.
He has gone through more than most, and handles it like a true champ. He never fails to make ME feel better about what's going on with him. He has an incredible insight on life that I wish everyone could experience. He makes me a proud mama, and I adore him. (Although, the summertime boredom fights with his brothers could calm down a bit.)
On to the point of this post.
Braeden has been doing pretty well since his last MRI in April. He has been busy with school, GMS camp, bowling league, drums and just stuff in general. (The boy will have had a total of 6 MD and therapy appointments this week alone by tomorrow.) He is still not a fan of OT and PT in case you were wondering, lol. His left hand weakness continues to be a pretty significant issue for him. He has so much atrophy in that hand, it makes a lot of simple tasks that we think nothing of very difficult for him to accomplish. He reports that some of his numbness is better, and he feels like his hand is stronger. He says that holding his trumpet is an easier task. But then on the other hand, no pun intended, there are still so many things he is unable to do, but in his own way he is figuring out a way to compensate and be self sufficient.
He is schmoozing his way out of some of his chores around here, but I am OK with that.
Braeden had a follow up MRI yesterday, and we got the results today. Dr. Fuchs was happy to report that the scan looked stable and good to him. The plan is to repeat a scan in 3 months. The initial plan was to repeat the scan in 6 months, but Braeden was seen by his endocrinologist yesterday, and was told that if his MRI looked good we could start back his growth hormone. The tricky part of that plan is GH makes the good and the bad grow. So to keep a closer eye on things Braeden will have another MRI in October to see how things look. Dr Fuchs seems to think that him being on GH will not cause the "leftover" tumor that was left behind from surgery to grow.
As always, the love and prayers and texts and hugs from afar are always so appreciated.
Until the next MRI.....
#BraedenBrave
#MrUnlucky
