A few of y'all have reached out to me and asked if there was any news this week.
The past week has been somewhat uneventful from "an appointment" standpoint. Bart and I have been "tag teaming" and trying to get thru to the Neurologist and the Hand Specialist at Duke we were referred to. It's been frustrating to say the least. (It seems that no one cares about Braeden quite as much as we do.) We are hoping to make some leeway this week with more phone calls and emails.
Big appointments are coming up on the 18th, the complete spinal cord MRI will be done this day.We have an appointment with Dr. Fuchs (his neurosurgeon since he was a baby) to discuss the results the next day. (The MRI appointment is scheduled for next Sunday at 7:30 AM. Can you hear the grumblings of a certain teenager we all know and love?)
I would say that we both have a lot of trust in Dr. Fuchs and our difficulties trying to get in with these other MDs will be brought up on the 19th and hopefully he can fast track us if we have not had any success by the time we see him that day.
Now on to Braeden:
Spinal tumor/lesion----No updates till next week about this problem. Prayers are appreciated, and I mean appreciated.
Left sided weakness as benign as that seems, is causing the most disruptions for Braeden on a daily basis.
On Thursday he told me that "my two fingers in my brace have fallen asleep four times today and that's different and new. Mom when is my appointment? Things are getting worse."
He is also losing the ability to do simple tasks. I took a picture on that Thursday (11/8/18) to compare from a picture I took of his left hand on 9/1/18 when everything began presenting itself. The picture to me is quite alarming. I will attach the picture to this blog as a reference. (In the picture on the left is from September, and the right side is from Thursday.) This picture reflects how much Braeden is able to "stretch out his hand". Braeden, I think is worried about how quickly things are progressing. He asked me to send a "comparison picture" to his doctor so that they could see how "bad" things are getting for him.
Emotionally, I am having some tough days. I am just being honest and it is what it is. I am seeing my sweet, quick witted, and bighearted child go thru something. I mean, this kid has already gone thru more than most of us have as adults. IT'S JUST NOT FAIR, and not having the answers as to why this is happening is difficult. I am very appreciative of my friends who let me do the "ugly cry" and are loving me thru this. I need you all, and I am so thankful for your love and hugs.
#BraedenBrave
#MrUnlucky
I would say that we both have a lot of trust in Dr. Fuchs and our difficulties trying to get in with these other MDs will be brought up on the 19th and hopefully he can fast track us if we have not had any success by the time we see him that day.
Now on to Braeden:
Spinal tumor/lesion----No updates till next week about this problem. Prayers are appreciated, and I mean appreciated.
Left sided weakness as benign as that seems, is causing the most disruptions for Braeden on a daily basis.
On Thursday he told me that "my two fingers in my brace have fallen asleep four times today and that's different and new. Mom when is my appointment? Things are getting worse."
He is also losing the ability to do simple tasks. I took a picture on that Thursday (11/8/18) to compare from a picture I took of his left hand on 9/1/18 when everything began presenting itself. The picture to me is quite alarming. I will attach the picture to this blog as a reference. (In the picture on the left is from September, and the right side is from Thursday.) This picture reflects how much Braeden is able to "stretch out his hand". Braeden, I think is worried about how quickly things are progressing. He asked me to send a "comparison picture" to his doctor so that they could see how "bad" things are getting for him.
Emotionally, I am having some tough days. I am just being honest and it is what it is. I am seeing my sweet, quick witted, and bighearted child go thru something. I mean, this kid has already gone thru more than most of us have as adults. IT'S JUST NOT FAIR, and not having the answers as to why this is happening is difficult. I am very appreciative of my friends who let me do the "ugly cry" and are loving me thru this. I need you all, and I am so thankful for your love and hugs.
#BraedenBrave
#MrUnlucky
Praying for you all. Hope they find the cause of his left side weakness on the 18th and that y’all get on “fast track” appointments with the doctors!
ReplyDeleteLove y’all🤗
It's not fair....it's not. I wish I had more answers and just the right thing to say. Most of all.....with your tenacity, that sweet boy is being cared for, and he knows it. Good going!! The prayers will continue and I need to give you a hug too. I love you guys! 💪💪
ReplyDeleteIt is NOT fair!! I’m just so happy that your sweet guy has YOU! Stay strong sweet friend. Lots of prayers 🙏
ReplyDeleteDani xo
DeletePrayers for Breaden's health and recovery. Prayers for you and your family for more strength and wisdom as you navigate these trials. The amount of strength that ya'll have shown so far is mind boggling.
ReplyDeleteMarsha,
ReplyDeleteOnce again, you and your family are going through the unthinkable. This just isn't fair. But honey, you are the epitome of grace and realness. I am praying for complete healing for Braeden. For peace of mind and just pure love to be surrounding your beautiful boys. Love you girl. #braedenbrave
Thank you for the sweet words. I am sure that I love you too :)
Delete