I have had a few texts from others that are not on FB today asking how Braeden is doing, So here is an update for all of my friends that are on FB and those that do not have FB.
Braeden was released from the hospital yesterday. He was given a cane to use to help steady himself and to use for balance. If this morning is any indication, the cane will likely get lost by the end of the week.
His first night at home was not without struggles, (pain level and maneuvering himself in and out of bed were difficult for him last night) my hope is that as more days go by, these struggles will resolve quickly.
He still has a lot of work to do to get back to "being normal." He told me today, that he had set a goal for himself to return to school the week before the holiday.
This kid means business, and he will need to get a lot of things accomplished before this happens.
He needs intensive OT for his hand. The sooner the better....
He also needs to be able to do his ADLs. (ADL= activities of daily living) As simple as this sounds, he has a long way to go with this.
In talking with Duke their first available appointment for OT is on 12/12. Their first available appointment for PT is 12/17 (in Chapel Hill, yikes!) These appointment dates seem so far away, and also the drive seems so far away. We will certainly get him where ever he needs to go, but it would be nice to have his therapy appointments more local.
Braeden's pediatrician, Dr Joanne gave me a call today. She has been Braeden's doctor since he was born. She had just gotten a note about Braeden's surgery, and had no idea that any of this had happened with Braeden. She is wonderful, and we have always valued her so much as the kid's pediatrician. It's a great feeling knowing that she is in his corner and will absolutely do all she can for him and us as a family to help get him the care he needs.
She told me she would write orders for referrals for Braeden to try to get him into a more local OT and PT office, and hopefully an office with appointments that are available sooner than the above appointments mentioned.
Our plan on Wednesday is to start tackling all of the schoolwork he has missed. The "school" show must go on.
We have not heard from Dr Fuchs about the pathology report. We will continue to wait "impatiently" for those results. Those results hold the answer of which path we will be headed down next with Braeden.
As always, prayers are appreciated, and are working. Keep up the good work! I would love the prayer of NO CHEMO or RADIATION to be answered.
The meals/the gift cards for meals (the boy is a foodie, and loves a good meal)
The visits (he is such a people person, and likes to be around others)
The get well cards (he has read each and everyone of them)
The gifts of chocolate and "junk food" (need I say more)
Each of things have brought a smile to his face, and I thank you!
Until the next post...
#BraedenBrave
#MrUnlucky
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