I am so very excited to let everyone know, that we have been scheduled to be seen at CHOP on July 21st at 10:15 am.
Eva, the scheduler, with whom I spoke to make this appointment is planning on calling me back today at 4 pm call her back today at 4 pm to let how me know how many days we need to plan to stay.
This news couldn't have come at a better time. This past Wednesday, Braeden recorded his lowest right hand strength of 10.2. We restarted his steroids in hopes that this would improve his numbers. Steroids are a last resort, and I know his doctor was hesitant to restart them. It was definitely a "between a rock and a hard place" decision.
Next week, Braeden has a follow up with Dr. Fuchs on Tuesday. This will be the day we discuss if he thinks Braeden needs a spinal fusion.
On Wednesday, we have a tentative Avastin infusion scheduled. If we plan a surgery on Tuesday, this appointment will be canceled.
Until next week!
#BraedenBrave
#MrUnlucky
#B.A.S.S.
Very excited for all of you! <3
ReplyDeleteStill praying. Thanks for keeping us in the loop. Love you all so much.
ReplyDelete