Thursday, July 16, 2020

Delays, tears and a lot of disappointment

Braeden’s appointments at CHOP  have been delayed until 8/18/2020.  The reasoning is the whole team would not be able to see him next week while we are there.  Dr. Minter, who is coordinating all of the team was not able to get us neuromuscular appointment till 8/18.   I will keep you posted as I know.   I know that things happen for a reason, but this stings a lot.  

#BraedenBrave
#MrUnLucky


2 comments:

  1. 🙁 keeping our prayers going. 🙏🏻💙

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  2. I can't comprehend.....I really can't. But I know there's a good reason. Holding onto faith and hope. I hope Dr. Fuch's has a plan until then...

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